World Thalassemia Day [May 8]: Theme, Significance

By : Neha Dhyani

Updated : Apr 6, 2023, 17:27

World Thalassemia Day is observed every year on May 8 to raise awareness about thalassemia and other blood disorders. The day honours people who have battled this hereditary condition and raises awareness about its symptoms. World Thalassemia Day was established in 1994 by Thalassemia International Federation (TIF).

This day also honours the long-term efforts of doctors and other medical professionals dedicated to improving the lives of those affected by thalassemia. In this article, we have shared more information about World Thalassemia Day, its history, theme and significance.

World Thalassemia Day 2023

Thalassemia International Federation (TIF) declared May 8 as World Thalassemia Day to raise awareness about blood disorders such as thalassemia. World Thalassemia Day aims to raise awareness of the condition and assist thalassemia patients in living normal life notwithstanding the disease's burden.

This disorder is caused by a lack of haemoglobin in the body. Learn more about this condition and World Thalassemia Day here.

Day

World Thalassemia Day

Observed

May 8

World Thalassemia Day 2023 Theme

“Be Aware. Share. Care: Strengthening Education to Bridge the Thalassaemia Care Gap”

Established by

Thalassemia International Federation (TIF)

Established in

1994

Aim

To raise awareness about thalassemia and other similar conditions and honor those who lost their lives to such hereditary conditions

World Thalassemia Day 2023 Theme

Every year, Thalassemia International Federation announces a new theme for World Thalassemia Day. The theme aims to motivate everyone to contribute to the battle against thalassemia and it serves as a compelling reminder that everyone has a significant role to play as well as a responsibility to act.

World Thalassemia Day 2023 theme is “Be Aware. Share. Care: Strengthening Education to Bridge the Thalassaemia Care Gap.” It aims to encourage people to share their knowledge about thalassemia, its symptoms and treatment.

World Thalassemia Day Theme (2012–2023)

World Thalassemia Day is a call to action for supporters to raise awareness about thalassemia and its impact. It also aims to share vital information to help patients with this disease receive the best possible healthcare. Check out the World Thalassemia Day theme from the year 2012 to 2023 below.

Year

World Thalassemia Day Theme

2023

“Be Aware. Share. Care: Strengthening Education to Bridge the Thalassaemia Care Gap”

2022

“Be Aware. Share. Care: Working with the global community as one to improve thalassemia knowledge”

2021

“Addressing Health Inequalities Across the Global Thalassaemia Community”

2020

”The dawning of a new era for thalassaemia: Time for a global effort to make novel therapies accessible and affordable to patients”

2019

“Universal access to quality thalassaemia healthcare services: Building bridges with and for patients”

2018

“Thalassaemia past, present and future: Documenting progress and patients’ needs worldwide”

2017

“Get connected: Share knowledge and experience and fight for a better tomorrow in thalassaemia”

2016

“Access to safe and effective drugs in thalassaemia”

2015

“Enhancing partnership towards patient-centred health systems: good health adds life to years!”

2014

“Economic Recession: Observe – Joint Forces – Safeguard Health”

2013

“The right for quality health care of every patient with Thalassaemia: major and beyond”

2012

“Patients’ Rights Revisited”

World Thalassemia Day Significance

World Thalassemia Day is observed to raise awareness about the disease, its symptoms, and its causes. Thalassemia is a hereditary disease that claims the lives of millions of people every ye ar. Initiatives such as World Thalassemia Day are important to make people aware of the disease and its causes.

  • International Thalassemia Day attempts to educate young people about the significance of visiting a doctor before expecting a child to prevent HIV from spreading.
  • On World Thalassemia Day, people also debunk myths as well as misconceptions about the condition while emphasizing its importance.

What is Thalassemia?

World Thalassemia Day raises awareness about the severity of this condition. Thalassemia is a blood disorder that is handed on from one generation to the next. Treatment for thalassemia varies based on the kind and severity of the disease. This disorder impairs the body's ability to generate haemoglobin and red blood cells.

  • A person with thalassemia disease will have a low amount of red blood cells and almost no haemoglobin.
  • World Thalassemia Day is important to encourage more people to get checked for blood-borne diseases.
  • The most prevalent carriers of this disease are those from the Mediterranean, South Asia, and Africa.

Thalassemia Day in India

World Thalassemia Day is celebrated annually in India to help people become more about this disease. Around 10,000 children are born with Thalassemia each year in India. Northern India has a Thalassemia gene that ranges from 3% to 15%, while southern India has a Thalassemia gene that ranges from 1% to 3%.

  • An important fact on World Thalassemia Day is that India is the world's thalassemia capital with 40 million carriers.
  • At the national level, there is no preventative and control program.
  • People with thalassemia are unintentionally passing this genetic condition on to their children since preventive health exams are not the norm in India.
  • This is why celebrating World Thalassemia Day is important.

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FAQs on World Thalassemia Day

Q1. When is World Thalassemia Day celebrated?

World Thalassemia Day is observed every year on May 8 to raise awareness about thalassemia, an inherited blood condition that causes symptoms like fatigue, paleness and slow growth. World Thalassemia Day was first celebrated in 1994.

Q2. What is the theme of World Thalassemia Day 2023?

World Thalassemia Day 2023 theme is “Be Aware. Share. Care: Strengthening Education to Bridge the Thalassaemia Care Gap”. This year’s theme aims to encourage raising more and more awareness about thalassemia so that people understand the disease and its management to live fulfilling life.

Q3. Who started World Thalassemia Day?

Thalassemia International Federation (TIF) started World Thalassemia Day in 1994 to raise awareness about inherited blood disorders. Since then, World Thalassemia Day has been celebrated in several countries around the world.

Q4. What is the theme of World Thalassemia Day 2022?

World Thalassemia Day 2022 theme was “Be Aware. Share. Care: Working with the global community as one to improve thalassemia knowledge.” The theme for World Thalassemia Day 2022 is an open call to action for all supporters to increase awareness of thalassemia and its global impact.

Q5. What is the purpose of World Thalassemia Day?

World Thalassemia Day attempts to educate young people about the significance of visiting a doctor before expecting a child to prevent HIV from spreading. It is also a day to remember those who lost their lives to this medical condition.