Haemophilia is a condition which is generally inherited. When a person has Haemophilia, their body's ability to form blood clots reduces significantly. Therefore, even if these patients experience a minor injury, they may experience severe bleeding. There is a protein called the clotting factor responsible for forming blood clots. If a person has haemophilia, the protein gets significantly reduced in the body, so clot formation becomes difficult.
The condition of haemophilia is quite rare as only 1 out of 10,000 people suffer from it or rather are born with it. World Haemophilia Day is observed to make people aware of the possible causes of the disease and how the disease can be treated.
World Haemophilia Day History
World Haemophilia Day is observed every year on April 17. Every year, a different theme is declared for the celebration of the cause. This day is observed to honour Frank Schnabel, who is the founder of the World Federation of Haemophilia.
Since 1989, all the people who suffer from different kinds of bleeding disorders have come together on the International Haemophilia day to celebrate their journey and treatment experience and bring about an awareness in the community.
These people also make public officials aware of their challenges during treatment due to the lack of proper healthcare systems.
Two types of haemophilia are known to humankind:
- Haemophilia A is the most frequent kind of haemophilia. This indicates that the person is deficient in clotting factor VIII (factor eight)
- Haemophilia B is a less common haemophilia. A person with Haemophilia B lacks sufficient factor IX (factor nine)
The popular notion about haemophilia is that men are more prone to the disease than women. Also, there are different symptoms of haemophilia that you should know about. Some of these symptoms are:
- A lot of bruises which are usually large
- The blood leaks into the muscles and joints
- Bleeding that occurs without warning (sudden bleeding inside the body for no apparent reason)
- Prolonged bleeding following a cut, tooth extraction, or surgery
Tests and Treatment
A test of haemophilia is done by taking a sample of blood and then checking it for the level of protein factor in the blood.
There is only one known treatment for the haemophilia disease, which is the replacement therapy. In this kind of treatment, several doses of the clotting factor VIII or the clotting factor IX are given to the body depending on the type of haemophilia. These infusions make up for the low factor in the blood.
World Haemophilia Day Significance
According to the Haemophilia Foundation Australia, a WFH member organisation, World Haemophilia Day is observed every year on April 17 to ensure increased awareness of haemophilia and other inherited bleeding disorders, which will lead to better diagnosis and access to care for the millions who remain untreated.
World Haemophilia Day Objective
The goal of World Haemophilia Day is to raise awareness of haemophilia and other inherited bleeding disorders in order to improve and sustain care for persons with hereditary bleeding disorders all over the world.
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World Haemophilia Day Theme
The theme of World Haemophilia Day for 2022 was "Access for All: Partnership, Policy, Progress." Every year a theme is decided to celebrate the day depending on the new challenges that haemophilia patients face.
The theme for World Haemophilia Day in 2021 was "Adapting to change." This theme highlighted the challenges that the pandemic had brought along and how people will have to learn to coexist with these challenges.
Haemophilia is a difficult condition, and several patients are battling the deadly disease. You can help the community spread their message on World Haemophilia Day and help fight the disease.
FAQs on World Haemophilia Day
Q.1. When is World Haemophilia Day celebrated?
World Haemophilia Day is celebrated every year on April 17th.
Q.2. Who is honoured on World Haemophilia Day?
Frank Schnabel is honoured every year on World Haemophilia Day.
Q.3. When was World Haemophilia Day first celebrated?
World Haemophilia Day was first celebrated in the year 1989.
Q.4. What is the theme of World Haemophilia Day 2022?
The theme of World Haemophilia Day 2022 is “Access for all: Policy, Partnership, Progress.”
Q.5. When was the World Federation of Haemophilia established, and what does it have to do with World Haemophilia Day?
The World Federation of Haemophilia was established in 1963, and to honour its founder, World Haemophilia Day is celebrated every year.